Shaping the Future of Paediatric Palliative Care Project

Palliative Care Australia
Closes: 30 June 2024Consultations & Surveys

About

Palliative Care Australia (PCA) is the national peak body for palliative care. They work closely with consumers, the palliative care workforce and their members to improve access to palliative care.

Together with Paediatric Palliative Care Australia & New Zealand, Palliative Care Australia is currently leading the Shaping the Future of Paediatric Palliative Care project to strengthen the delivery of paediatric palliative care. Outcomes of the project will be focussed on increasing workforce skills, developing clinical guidelines, improving referral strategies, and creating a Transition Pathway for young people and families transitioning between paediatric and adult palliative care services.

PCA values parents, carers, and young people as partners in research projects. By co-designing activities together, PCA believes that their work and initiatives will reflect real experiences, needs and aspirations.

The opportunity and your role

There are several opportunities available to consumers (parents, carers, young people and families) who have experienced paediatric palliative care to participate in the Shaping the Future of Paediatric Palliative Care project over the coming months through to 2026. These include, but are not limited to:

  • Workshops
  • Working groups
  • Interviews
  • Sharing your story through written, video or podcast formats
  • Surveys
  • Providing feedback on resources
  • Reviewing project documents

Consumers who participate in the project will be remunerated at the rate of $80 per hour.

To apply and for further information

Consumers interested in participating in one or more initiatives of the project are invited to express their interest by completing the survey.

To learn more about the project, visit the project website.

To register your interest, complete the survey.