National
The CJD Support Group Network offers support to all Australians affected by Creutztfeldt-Jakob Disease or other prion diseases. It is a rare and fatal degenerative disease in humans.
National
The Continence Foundation of Australia is the peak body for continence. Its mission, to promote continence and manage incontinence is largely met through the National Continence Helpline (1800 33 00 66), a free and confidential Commonwealth Government service which the Foundation manages.
National
COTA is a national consumer peak body in the ageing sector seeking to promote, improve and protect the circumstances and well being of older people in Australia.
National
Cystic Fibrosis Australia aims to facilitate and promote the provision of optimal care to all people affected by Cystic Fibrosis and ensure they have the best possible quality of life.
National
Alzheimer's Australia is the national peak body for people living with dementia, their families and carers and provides leadership in policy and services.
New South Wales
DES Action Australia NSW is a support group for those affected by DES (diethylstilboestrol). DES was a drug given in pregnancy to prevent miscarriage (1938-1980s). It caused cancer and reproductive health risks to those women and their exposed offspring
South Australia
Diabetes South Australia is a charity working towards the management, detection and prevention of diabetes and finding cure for this disease.
National
Diabetes Australia is the national peak body for diabetes in Australia providing a single, powerful, collective voice for people living with diabetes, their families and carers. A non-profit organisation, Diabetes Australia works in partnership with diabetes consumer organisations, health professionals, educators and researchers to minimise the impact of diabetes in the Australian community. Diabetes Australia is committed to turning diabetes around through awareness, prevention, detection, management and the search for a cure.
National
Epilepsy Action Australia (EAA) provides education and support services to children and adults with epilepsy across Australia. EAA has delivered services nationwide for more than a decade and is the largest provider of specialist epilepsy services in the community for people with epilepsy
National
Fabry Australia is a National patient organisation, founded by Fabry families in 1994. It represents over 200 families affected by Fabry disease. Fabry Australia is a registered charity supported by voluntary donations, education grants, fundraising and is managed by a part time staff member and governed by a management committee.
National
AGSA, a peak body providing peer support /information to people affected directly or indirectly by rare diseases (80% of which are genetic). AGSA lobbies Government on issues relating to rare diseases and runs support services for carers. AGSA holds the largest rare disease register in the region and is recognised nationally and internationally.
Western Australia
GaRDN is the peak body for genetic and rare disease support groups in WA and works to empower individuals and their families to reach positive health outcomes. We inform health professionals and the wider community on the perspectives and experiences of those affected by genetic and rare diseases. We connect key stakeholders and service providers with people affected by genetic and rare diseases.
Victoria
The Genetic Support Network of Victoria (GSNV) is a vibrant and active organisation committed to promoting the interests and well-being of people touched by genetic conditions.  The Network is proud to be associated with a wide range of support groups thr
National
National support, advocacy and health promotion group for people with the genetic condition haemochromatosis (inherited iron overload disorder).
Australian Capital Territory
The Health Care Consumers' Association of the ACT (HCCA) was formed in 1978 by concerned ACT health care consumers to provide a voice for consumers on local health issues. HCCA aims to be a means for health care consumers to participate in policy, planning and service decisions that affect their health. It does this by working with health providers to achieve services that are responsive, respectful, accessible and affordable to all; encouraging direct consumer involvement in health decision making; and lobbying and advocating on behalf of ACT health care consumers.
South Australia
Health Consumers Alliance of South Australia aims to provide a strong, independent, effective voice for health consumers in SA.
New South Wales
Health Consumers NSW represents the interests of patients, carers and their families in NSW. We believe in shaping a health system that listens to, respects, partners with and values health consumers. We are a not-for-profit organisation and registered health charity.
National
Health Consumers of Rural and Remote Australia is a not for profit organisation that works to improve rural health outcomes by involving consumers in the planning, implementation, management and evaluation of health services throughout non-metropolitan Australia.
Queensland
Health Consumers Queensland (HCQ) acts as a statewide, peak health consumer body to provide information and advice from a consumers (patients) perspective to shape health policy, systems and service reform. HCQ supports consumer, community and patient involvement in all aspects and stages of their individual and collective health care journey.
Victoria
Health issues Centre is a non-government, health policy/research centre which recommends improvements to the health system from the perspective of consumers. It aims to create a more equitable health care system which is more responsive to users, particularly those who are disadvantaged by current arrangements.
South Australia
Health Rights and Community Action Inc is a South Australian health consumer organisation promoting consumer rights and high quality health complaints handling processes that ensure simple, accountable, effective and transparent complaints processes exist, which respect consumers, resulting in consumer complaints leading to safer patient care and quality improvements in the health care.

hearts4heart

National
Supported by cardiologists, hearts4heart is a national not-for-profit & peak body that supports, educates & advocates for those living with heart disease.
National
Hepatitis Australia provide a national leadership and advocacy on viral hepatitis. They support partnerships for action to ensure the needs of Australians affected by or at risk of viral hepatitis are met.
National
The Leukaemia Foundation of Australia is dedicated to the care and cure of patients and families living with leukaemias, lymphomas, myeloma and related blood disorders.

Pages