Their activities include raising awareness through seminars, conferences, campaigns and advertising; and engaging with medical professionals and their associations, Government, charities and other organisations to advocate for families with Lynch syndrome.
The Maternity Coalition is Australia's National Maternity Consumer Organisation. We believe that birth matters in Australia today.
The Maternity Consumer Network is a national membership organization of maternity consumers, representatives, community organisations and statutory bodies, who are interested in impoving maternity care- a voice for all. It’s non-profit, non-political and non-sectarian consumer network, and provides support in maternity services, information sharing, strategic direction for campaigns and Maternity Consumer Representative Training.
The ME/CFS/FM Association - Queensland provides information, support and counselling to patients with chronic fatigue syndrome/fibromyalgia and their carers, and raises funds for medical research into the illnesses.
As the national peak body for people living with MS in Australia, they campaign about important issues on behalf of our community by working closely with our state societies, national advocates and MS Research Australia, to ensure their submissions and work are based on the latest evidence.
They advocate across all stakeholders, governments and communities on behalf of our state and territory member organisations to represent people who are diagnosed with the disease, their carers and the broader MS community.
The National Association of People Living with HIV/AIDS, Australia (NAPWA) is the peak national non - government organisation representing people living with HIV/AIDS community based groups in Australia. NAPWA is the only national association advocating and representing specifically on behalf of people living with HIV/AIDS, and it ensures that people living with HIV/AIDS are central to the Australian response to the HIV/AIDS epidemic.
The National LGBTI Health Alliance is a peak-body that works to improve the health and wellbeing of lesbian, gay, bisexual, transgender, intersex and other sexuality, sex and gender diverse people (LGBTI).
National Seniors Australia is a not-for-profit membership based community organisation. It is Australia's largest organisation representing those aged 50 years and over.
The National Stroke Foundation is a not-for-profit organisation that works with stroke survivors, carers, health professionals, government and the public to reduce the impact of stroke on the community. We are the voice of stroke in Australia.
Details of the 120 strong Support Group Network of PCFA can be found on the website www.pcfa.org.au . Affiliated Support Groups are run by prostate cancer patients or survivors. They provide a safe and secure environment for men and their families to find information and support during their journey.
Our mission is to improve the quality of life of people living with pain, their families and carers, and to minimise the social and economic burden of pain on individuals and the community. We advocate for improved health policy and practice; we promote access to education and training for health professionals; and we work to raise awareness of chronic pain within the community through media and education campaigns, to help reduce the stigma of this silent epidemic.
Palliative Care Australia is the national peak body for palliative care.
Palliative Care Australia represents all those who work towards high quality palliative care for all Australians. Working closely with consumers, our Member Organisations and the palliative care workforce, we aim to improve access to, and promote the need for, palliative care.
We believe quality palliative care occurs when strong networks exist between specialist palliative care providers, primary generalist, primary specialist and support care providers and the community.
Parkinson’s Australia represents over 70000 Australians living with Parkinson’s Disease through advocating their needs and interests to all levels of government. Our member organisations provide direct support to people with Parkinson’s, their families and carers. We also seek improved funding for services, research and awareness raising to improve the quality of life of these people. Our support group services can be accessed through our website or by calling 1899 644 189.
PANDA – Perinatal Anxiety & Depression Australia is a specialist not for profit organisation that has helped tens of thousands of Australians get vital information and support for antenatal and postnatal depression for over 30 years.
The Post-Polio Network (NSW) is a self-help self-funded volunteer organisation run by polio survivors. It provides information and support about the late effects of polio to polio survivors, their families and the health professionals who care for them.
The Queensland Alliance represents the Mental Health Community Sector who meet the needs of people who experience mental illness disability, including consumer groups, family and carer groups and non-government community-based service providers across Queensland. It strives to promote, strengthen and develop the growth of non-government, community-based, recovery-oriented responses to the needs of people who experience mental illness in Queensland.
Queensland Voice for Mental Health was launched as a united voice for consumers and carers to actively promote the health and well-being of all Queenslanders through advocacy, co-operation and education.
RVA is Australia's national organisation advocating for those who live with a rare disease. RVA provides a strong common voice to promote for health policy and a healthcare system that works for those with rare diseases. RVA works with governments, researchers, clinicians and industry to promote research, diagnosis, treatment and services for all rare diseases in Australia.
SHOUT (Self-Help Organisations United Together) is an umbrella organisation for ACT self-help and support groups.
Stroke Association of ACT
Stroke Association of ACT represents interests of Stroke sufferers in the ACT. Membership open to patients, carers and friends.
Sydney Children's Hospital Parent & Consumer Council
Tasmanians with Disabilities Inc is the peak organisation promoting disability rights in Tasmania. It is a consumer focused organisation founded by people with disabilities and managed by people with disabilities.
Tuberous Sclerosis Australia is a volunteer run organisation which helps families living with TSC through phone, email and online support services, educational materials and events, facilitation of peer support and funding of TSC research in Australia and New Zealand.
Meniere's Australia vision is that all Australians will have access to support services, information and personal support irrespective of geographic location and aims to provide a high level of community support for people who have Meniere's disease and other vestibular conditions.