The Chronic Illness Alliance is an alliance of chronic illness organisations. The aim of the Alliance is to build a better focus in health policies and health services for all people with chronic illness through education and research.
Cochrane Consumer Network (CCNet)
Community Engagement Unit School of Medicine - Western Sydney University
The Continence Foundation of Australia is the peak body for continence. Its mission, to promote continence and manage incontinence is largely met through the National Continence Helpline (1800 33 00 66), a free and confidential Commonwealth Government service which the Foundation manages.
COTA is a national consumer peak body in the ageing sector seeking to promote, improve and protect the circumstances and well being of older people in Australia.
Diabetes Australia is the national peak body for diabetes in Australia providing a single, powerful, collective voice for people living with diabetes, their families and carers. A non-profit organisation, Diabetes Australia works in partnership with diabetes consumer organisations, health professionals, educators and researchers to minimise the impact of diabetes in the Australian community. Diabetes Australia is committed to turning diabetes around through awareness, prevention, detection, management and the search for a cure.
AGSA, a peak body providing peer support /information to people affected directly or indirectly by rare diseases (80% of which are genetic). AGSA lobbies Government on issues relating to rare diseases and runs support services for carers. AGSA holds the largest rare disease register in the region and is recognised nationally and internationally.
National support, advocacy and health promotion group for people with the genetic condition haemochromatosis (inherited iron overload disorder).
Haemophilia Foundation Australia (HFA) represents people with inherited bleeding disorders and their families. HFA’s mission is to improve treatment and care through representation and advocacy, education and the promotion of research to enable people with bleeding disorders to lead active, independent and fulfilling lives.
The Health Care Consumers' Association of the ACT (HCCA) was formed in 1978 by concerned ACT health care consumers to provide a voice for consumers on local health issues. HCCA aims to be a means for health care consumers to participate in policy, planning and service decisions that affect their health. It does this by working with health providers to achieve services that are responsive, respectful, accessible and affordable to all; encouraging direct consumer involvement in health decision making; and lobbying and advocating on behalf of ACT health care consumers.
Health Consumers Alliance of South Australia aims to provide a strong, independent, effective voice for health consumers in SA.
Health Consumers Queensland (HCQ) acts as a statewide, peak health consumer body to provide information and advice from a consumers (patients) perspective to shape health policy, systems and service reform. HCQ supports consumer, community and patient involvement in all aspects and stages of their individual and collective health care journey.
The Health Consumers’ Council’s purpose is to raise awareness of and advocate for health consumer rights in Western Australia.
Health issues Centre is a non-government, health policy/research centre which recommends improvements to the health system from the perspective of consumers. It aims to create a more equitable health care system which is more responsive to users, particularly those who are disadvantaged by current arrangements.
Supported by cardiologists, hearts4heart is a national not-for-profit & peak body that supports, educates & advocates for those living with heart disease.
Hepatitis Australia provide a national leadership and advocacy on viral hepatitis. They support partnerships for action to ensure the needs of Australians affected by or at risk of viral hepatitis are met.
Their activities include raising awareness through seminars, conferences, campaigns and advertising; and engaging with medical professionals and their associations, Government, charities and other organisations to advocate for families with Lynch syndrome.
The ME/CFS/FM Association - Queensland provides information, support and counselling to patients with chronic fatigue syndrome/fibromyalgia and their carers, and raises funds for medical research into the illnesses.