The Real People; Real Data project will develop and pilot a cost-effective and easy-to-use tool for capturing and analysing consumer narratives of health, illness and the health system. The aim is to equip health services and consumers with a relevant and practical tool that can assist them to gather and assess consumer stories, and use this often-overlooked evidence base to inform decisions about health services, policies and reforms.
CHF has been funded by the Department of Health and Ageing to consult with our members on the Review of funding Arrangements for Chemotherapy Services. The initiation of the Review followed talks between the Government and the Pharmacy Guild of Australia over appropriate subsidies for dispensing chemotherapy after the reduction in the PBS subsidy for a key chemotherapy drug, Docetaxel.
CHF began working with Health Workforce Australia (HWA) in March 2012 to facilitate consumer engagement across a range of HWA projects and support consumer representatives on HWA Project Advisory Groups.
As part of the Commonwealth Government’s Diagnostic Imaging Quality Program, the Department of Health and Ageing has funded CHF to inform and consult with healthcare consumers about current diagnostic imaging practice.
CHF received funding from the National E-Health Transition Authority (NEHTA) to facilitate consumer input to the national eHealth record. The aim of this project was to support health consumers and other community members engagement in the implementation of personally controlled electronic health records (PCEHR), and to keep them informed about the progress of the program.
CHF began working with the Australian Health Practitioner Regulation Agency (AHPRA) in August 2012 to build and sustain effective community engagement with health practitioner regulation and the National Scheme.
Bupa Health Foundation (BHF) funded CHF to review current evidence about consumers’ knowledge of processes for informed consent and informed financial consent; consult with consumers across Australia about these issues, and identify areas for improvement.
On Monday 29 August 2011, prior to the Joint Medicines Policy Conference, Medicines Australia and the Consumers Health Forum (CHF) co-hosted a pre-conference consumer workshop, Medicines, Health Technologies and Reform.