It takes a few steps to create a Health Experience Wheel. We encourage you to invite storytellers to be involved at key points in this process. It’s important to provide storytellers with opportunities to control their story and the way it is told. In particular, make sure they approve the final Health Experience Wheel that you will use for purposes that storytellers agree with you.
1. Identify the positive and negatives experiences in the story. Once you have a transcript or other written record of a story, work with the storyteller to identify the most important positive and negative experiences in their transcript with happy and sad face stamps. There are different ways to do this. For example, you could invite storyteller to use different coloured highlighters or pens to identify the most important positive and negative experiences on a paper copy of their story, by highlighting the relevant sections of text. You could ask storytellers to identify the positive and negative experiences by using a highlighter tool in a computer word processing program. You could talk with storytellers and together identify the high and low points in their story. Or, you can identify what you judge the most signficant positive and negative health system experiences in a story to be, and check your interpretation with the storyteller.
2. Enter the information into the Real People, Real Data spreadsheet. CHF provides an Excel CSV spreadsheet (available on the Templates page) for you to enter the information you want to display on the Health Experience Wheel. This could include some or all of the following:
- If it is appropriate to the aim of your project, record any necessary demographic or other profile information about the storyteller in the top section. This will be displayed in the centre of the Health Experience Wheel
(Remember: the inclusion and exclusion criteria for your storytelling project may well provide you with all the demographic information you require about participants. See the Planning section of this tool-kit.)
- Add the text from the story that corresponds to each positive and negative experience point (one experience point per row of the spreadsheet).
- Add a happy or sad face emoticon next to each experience point
- Add a short summary description next to each text point to succinctly describe what happened.
The aim of this step is provide a concise summary of what happened in the experience, from the storyteller’s perspective. Aim to keep your language neutral and non-judgemental, and as far as possible use the storyteller’s own words to summarise their experience.
3. Add a patient life journey stage to each experience point in the spreadsheet. These stages will be the same as the stages you identified as the basis for your patient life journey interview.
4. Use CHF’s (free) online Health Experience Wheel tool to automatically generate your experience wheel. CHF is glad to provide you access to this tool. Contact CHF for more details.
5. Provide the Health Experience Wheel to the storyteller to check, suggest any changes and approve.