3 September 2018 — Position Statements

Australian Consensus Framework for Ethical Collaboration in the Healthcare Sector

APEC

Since 2010, the Asia Pacific Economic Cooperation (APEC) has supported the development of statements articulating ethical principles for business and the healthcare sector in order to maximise the interests of patients and consumers, enhance access to safe and effective healthcare, and build public trust. APEC statements of ethical principles have been developed or are under development in a number of APEC member economies.

The Australian “Consensus Statement of Shared Values and Ethical Principles for Collaboration and Interaction among Organisations in the Healthcare Sector” is a government-supported, sector-led initiative that has been developed collaboratively by professional bodies, industry organisations, hospital and health services associations, regulators, patient and advocacy groups and other related organisations.

The Australian Consensus Statement does not replace existing statements, codes and guidelines, nor does it supersede, relace or re-interpret relevant Commonwealth, State or Territory laws and regulations. The Australian Consensus Statement describes the values and ethical principles that should form the basis of collaboration and interaction among organisations in the healthcare sector, and aims to:

• Promote collaboration and interaction among healthcare sector organisations and those who work within them that benefits patients, consumers, students, educators, communities, populations, healthcare systems and the healthcare sector.

• Encourage better dialogue, trust and respect between and amongst organisations in and working with the healthcare sector.

• Enhance the integrity and trustworthiness of organisations in the healthcare sector.

• Promote public confidence and trust in healthcare sector organisations by demonstrating a shared commitment to integrity and ethics.

23 August 2018 — Presentations and Speeches

Transcript: Overview of Digital Health and My Health Record Webinar

Watch here: youtube.com/watch?v=jBHkHqlQvhI -  In this webinar, we discuss among other topics how My Health Record currently and could in the future interact with the rest of the Ausrtralian health system, the safety and quality impacts of digital health, and what else is happening in digital health.

15 August 2018 — Fact Sheets

How committee secretariats can support consumer representatives

Consumers Health Forum

Committee secretariats can often enhance the contribution of a consumer representative on a particular committee by thinking through ways to support their involvement.

15 August 2018 — Fact Sheets

Guidelines for consumer representatives on conference organising committees

Consumers Health Forum
13 August 2018 — Fact Sheets

Confidentiality Guidelines

Consumers Health Forum

Consumer representatives are often concerned about how they can consult with other consumers – and be accountable to them – without infringing the confidentiality requirements of their committee. This fact sheet helps consumer representatives decide what is confidential. It is a guide only, different committees may have different requirements and consumer representatives should clarify these with their committee’s secretariat.

9 August 2018 — Consumers Shaping Health

Consumers Shaping Health Vol 12 Issue 3 August 2018

Consumers Health Forum
8 August 2018 — Presentations and Speeches

Transcript: Privacy, Security and My Health Record Webinar

Watch here: youtube.com/watch?v=5yhx4WZP6EM  In this webinar, we briefly cover My Health Record in general, then open a panel discussion that focussed on the privacy and security of the system, how legislation and policy affects it, and whether and what changes should be made to improve the privacy and security of My Health Record.

7 August 2018 — Submission

New Australian Government Data Sharing and Release Legislation: Response to issues paper

Consumers Health Forum

Our focus in this response is health data, as that is our area of expertise and interest. As recognised in the issues paper, health data is more sensitive than data about most other areas of a consumers’ lives, such as personal preference for transport to work or even more sensitive data like address or bank details. A consumer can change where they live, but not their medical history. More broadly in a conversation between the government and community on the public's expectations on data use is needed before enshrining values in new legislation. A clear set of underlying principles that allows citizens to understand the limits and protections on how data about them can be used by government, academia and industry must become common knowledge.

 

20 July 2018 — Submission

Submission on TGA complaints handling processes

Consumers Health Forum

CHF welcomed the Review of Medicines and Medical Device Regulation and, while we did not support removing the required pre-approval of therapeutic goods advertisements, we are pleased to work with the Therapeutic Goods Administration (TGA) to ensure that new arrangements will continue to protect consumer interests. We applaud the efforts to streamline the management and encourage greater consistency in decision-making relating to complaints about the advertising of therapeutic goods to the public.

9 July 2018 — Report

CHF 2017-18 Report Card

Consumers Health Forum

2017-18 was an exciting year for CHF, from working with our growing member base to reach millions of consumers, to launching initiatives that will make a real difference to Australia's healthcare system. Read our Report Card to learn more.

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