Watch here: youtu.be/B-9Z7KpQqW0 In this webinar, we discuss among other topics what skills are required to use My Health Record, the level of digital inclusion in Australia and discuss the ethics of the decision to opting people with low digital or health literacy into the My Health Record system.
Transcript: Digital Inclusion, Health Literacy and My Health Record Webinar
Medical Research Future Fund: Priorities Survey
The Australian Medical Research Advisory Board sought reflections and feedback on the first set of priorities for the Medical Research Future Fund (the MRFF) via a survey. This submission details CHF’s responses to the key questions in the survey.
Transcript: Risks of My Health Record Webinar
Watch here: youtu.be/M59yAJt_njM In this webinar, we discuss among other topics the risks to privacy and security, the risk to community perceptions of the intersection between the health system and government, and what measures are in place to manage and mitigate these risks.
Panellists
- Tony Kitzelmann – ADHA Chief Information Security Officer and General Manager for the ADHA Cyber Security Centre
- Dean Martin – Consumer Advocate, ADHA Consumer Advisory Committee member, Research Manager at Black Dog Institute
- David Hansen – CEO of the Australian e-Health Research Centre, Chair of the Health Informatics Society of Australia board
- Aaron Cogle – Executive Director, National Association of People with HIV Australia
Transcript: Benefits of My Health Record Webinar
Watch here: youtube.com/watch?v=xdOpbG8ZJo8. In this webinar, we discuss among other topics the benefits to the individual, the benefits to the health system, the barriers to realising benefits and what work is underway to measure benefits. This will include a discussion of some of the risks and limits, however the risks will be looked at in greater detail in following webinars.
Australian Consensus Framework for Ethical Collaboration in the Healthcare Sector
Since 2010, the Asia Pacific Economic Cooperation (APEC) has supported the development of statements articulating ethical principles for business and the healthcare sector in order to maximise the interests of patients and consumers, enhance access to safe and effective healthcare, and build public trust. APEC statements of ethical principles have been developed or are under development in a number of APEC member economies.
The Australian “Consensus Statement of Shared Values and Ethical Principles for Collaboration and Interaction among Organisations in the Healthcare Sector” is a government-supported, sector-led initiative that has been developed collaboratively by professional bodies, industry organisations, hospital and health services associations, regulators, patient and advocacy groups and other related organisations.
The Australian Consensus Statement does not replace existing statements, codes and guidelines, nor does it supersede, relace or re-interpret relevant Commonwealth, State or Territory laws and regulations. The Australian Consensus Statement describes the values and ethical principles that should form the basis of collaboration and interaction among organisations in the healthcare sector, and aims to:
• Promote collaboration and interaction among healthcare sector organisations and those who work within them that benefits patients, consumers, students, educators, communities, populations, healthcare systems and the healthcare sector.
• Encourage better dialogue, trust and respect between and amongst organisations in and working with the healthcare sector.
• Enhance the integrity and trustworthiness of organisations in the healthcare sector.
• Promote public confidence and trust in healthcare sector organisations by demonstrating a shared commitment to integrity and ethics.
Transcript: Overview of Digital Health and My Health Record Webinar
Watch here: youtube.com/watch?v=jBHkHqlQvhI - In this webinar, we discuss among other topics how My Health Record currently and could in the future interact with the rest of the Ausrtralian health system, the safety and quality impacts of digital health, and what else is happening in digital health.
How committee secretariats can support consumer representatives
Committee secretariats can often enhance the contribution of a consumer representative on a particular committee by thinking through ways to support their involvement.
Guidelines for consumer representatives on conference organising committees
Confidentiality Guidelines
Consumer representatives are often concerned about how they can consult with other consumers – and be accountable to them – without infringing the confidentiality requirements of their committee. This fact sheet helps consumer representatives decide what is confidential. It is a guide only, different committees may have different requirements and consumer representatives should clarify these with their committee’s secretariat.