Our focus in this response is health data, as that is our area of expertise and interest. As recognised in the issues paper, health data is more sensitive than data about most other areas of a consumers’ lives, such as personal preference for transport to work or even more sensitive data like address or bank details. A consumer can change where they live, but not their medical history. More broadly in a conversation between the government and community on the public's expectations on data use is needed before enshrining values in new legislation. A clear set of underlying principles that allows citizens to understand the limits and protections on how data about them can be used by government, academia and industry must become common knowledge.

 

Publication type: 
Publish date: 
Tuesday, August 7, 2018
Author: 
Consumers Health Forum