Consumer health data – clinical and socio-demographic – is increasingly collected, linked and used, both with and without consumers’ knowledge and informed consent. There is increasing focus on ‘big data’, evidence-informed policy, and the value of data-driven service development and improvement. Recent examples of this include consultations about the secondary use of health data, incentivising the capture of data at the point of care delivery, and the My Health Record.
We regularly release reports both on our own and with partners. For access to reports released earlier than available here, please contact us.
This consensus statement has been developed by Palliative Care Australia, Consumers Health Forum
of Australia and Carers Australia. Palliative care and end-of-life care should be strongly responsive
to the needs, preferences and values of people, their families and carers. People should be able to
access appropriate palliative care support, regardless of income, background, diagnosis, prognosis;
they should be able to access palliative care when and where they need it.
When we decided to look at out of pocket costs we wanted to get a better understanding of how much people pay, who pays and what impact these costs have on their healthcare and their lives. We asked people to give us their story as well as giving us some basic information through the survey. The full stories show how individuals and families are impacted when faced with the double dilemma of difficult health decisions and high, sometimes unexpected, out of pocket expenses.
Private patients routinely face bills ru nning into thousands of dollars, in a system characterised by high cost, complexity and confusion, the Consumer Health Forum's Out of Pocket Pain survey has found. An added challenge is the variation inlevels of health literacy across the Australian community.
This is a summary of the Tipping the Scales - Australian Obesity Prevention Consensus report that outlines eight actions for the Australian federal government to take, established by a comprehensive consensus process as agreed elements to underpin a national obesity prevention plan.
Australia’s health, wellbeing and productivity is being threatened by an epidemic of weight-related illness. Most Australian adults (63.4%) are above a healthy weight with 27.9% obese and 35.5% overweight.
This is a one-pager that summarises the key points from the full Report, 'Consumer Priorities for a National Health Plan'.
This issues paper outlines a consumer perspective on the key design principles and elements which should be incorporated in the four pillars envisaged as part of a national health plan for Australia.